Palliative care and choice must be at the heart of the assisted dying debate | Letters

A UK parliamentary committee's inquiry into assisted dying has sparked a heated debate about the need for improved palliative care. While some argue that this issue is separate from discussions around assisted dying, others contend that the two cannot be ignored.

Critics of the assisted dying bill point to the current state of end-of-life care in the NHS as a pressing concern. Palliative care specialist Rachel Clarke recently highlighted the neglect of dying patients, citing statistics on deaths at home and inadequate GP visits during terminal stages. However, experts argue that this is precisely why assisted dying must be part of the conversation.

The CEO of Hospice UK, Toby Porter, notes that the government's Β£100m investment in hospices was partly driven by the Termination of Life Unwantedly (TLU) bill. This suggests that discussions around assisted dying have indeed led to increased investment and attention on palliative care.

Health Minister Stephen Kinnock has acknowledged that the bill has sparked improvements in palliative care, including announcements about further investments in the coming weeks. However, critics point out that even with increased funding, many hospices operate on a patchwork system with varying levels of service quality across different regions.

The lack of standardization and financial sustainability is causing problems, as highlighted by the National Audit Office's review of adult hospice services. The current reliance on charitable support hinders progress, resulting in an unequal distribution of patient beds and services.

Some argue that the introduction of out-of-hours teams has led to a decline in primary care teams' ability to offer 24-hour palliative care. This results in patients being forced to rely on under-resourced services, further exacerbating the end-of-life care crisis.

The debate around assisted dying also offers an opportunity for learning from other sectors, such as obstetrics. The unified service provided by birth units is a model worth emulating, with better funding and resources.

Ultimately, the debate around assisted dying highlights the need for a comprehensive approach to palliative care, including improved access, quality, and choice. While there are valid concerns about the risks associated with assisted dying, these must be balanced against the human cost of continued suffering.

As one writer notes, even the most advanced palliative care has its limits, and assisted dying can provide a dignified option for those who have exhausted all other avenues. The current system is not meeting the needs of all patients, particularly those in distressing situations like her mother's.

The debate around assisted dying must continue, with a focus on driving meaningful conversations and investment in end-of-life care. By welcoming this conversation, we can work towards creating a more compassionate and dignified system for all patients at the end of life.
 
I think the issue here is that palliative care is getting a bit of a free pass while assisted dying gets all the heat πŸ€”. I mean, let's be real, we need better hospices and more funding ASAP, but is it fair to make people wait forever for proper care when they're struggling? πŸ’” The stats on deaths at home are shocking, and it's clear that our current system is not doing enough.

I love the point about the birth units in obstetrics, though - it's a great example of how we can learn from other sectors to improve palliative care. And Toby Porter's comment about the TLU bill sparking investment is telling πŸ€‘. The fact that we're still seeing patchwork systems and under-resourced services is unacceptable.

I think the key is to find a balance between compassion and caution, but it's hard to see how we can make progress when we're not having an open and honest conversation about what works and what doesn't. We need to acknowledge the human cost of suffering and make sure that our system is providing choices and options for patients who are struggling.

The only way forward is to keep driving this debate and pushing for real change πŸ’ͺ. Let's stop beating around the bush and start talking about what needs to be done to improve end-of-life care in the UK!
 
I think this whole thing is kinda awesome 🀩 I mean, it's crazy that just 'cause one bill gets introduced, we start seein' improvements in palliative care right? It's like, we're gettin' our priorities straight and makin' sure everyone's got access to decent end-of-life care. And yeah, we should def be learnin' from other sectors too - those birth units seem like they're doin' it right! πŸ€°β€β™€οΈ

And let's not forget about the emotional toll of sufferin' - it's a huge issue and we gotta acknowledge it. But rather than just focusin' on the risks, we should be thinkin' about how we can make sure everyone's got a dignified way out, no matter what their circumstances. I mean, it's not perfect, but at least we're havin' these important conversations, right? πŸ’¬
 
I think it's super important that we're having this conversation about assisted dying and palliative care. I mean, if someone's family is stuck with their loved one in a hospital bed that's literally burning up, what's the point of even calling it hospice care? It feels like they're just throwing money at the problem instead of actually fixing it. And don't even get me started on these patchwork systems where some hospices are super good and others are barely scraping by. It's just so frustrating.

I also think we need to look at other places for inspiration, like birth units. I mean, can you imagine having a dedicated team that's all about supporting the new parents? That sounds way more compassionate than our current system. And let's be real, some people are literally dying and it's taking them months or even years to get the care they need. It's just not right.

I guess what I'm saying is we can't keep pretending like our current system is working when it's clear that it's not. We need to have this conversation about assisted dying and palliative care and make some real changes happen. πŸ’–
 
πŸ€” I mean, have you seen the state of palliative care in the UK? It's like they're trying to make dying as painful as possible! πŸ˜‚ Just kidding, it's actually really serious. But seriously, Β£100m investment is a good start, but we need more standardization and funding that doesn't rely on charity. I mean, can you imagine having to choose between paying your electricity bill or getting proper care for your loved one? 🚨 Not ideal.

And don't even get me started on out-of-hours teams... it's like they're saying "Hey, we'll give you some basic care, but good luck with the rest!" πŸ€·β€β™‚οΈ Obstetrics have got this right, though - unified service all day long. Let's learn from them!

I think assisted dying is a tough one, but I do agree that it can provide a dignified option for those who've tried everything else. And let's be real, who wants to die in a hospital with mediocre food and even worse company? πŸ˜‚ Not me, that's for sure.

So yeah, the debate around assisted dying needs to keep going - let's have some tough conversations and get more funding into palliative care. We owe it to our loved ones to make end-of-life care as decent as possible! πŸ’•
 
I'm seeing this whole thing with assisted dying and palliative care just getting more heated πŸ€”. I get why people are worried about the current state of end-of-life care in the NHS, but at the same time, I think it's true that discussions around assisted dying can help bring more attention and investment to this area πŸ’Έ.

I'm not sure if having out-of-hours teams is really the answer, though - it sounds like it might be pushing patients towards under-resourced services πŸš‘. And the fact that hospices are operating on a patchwork system with varying levels of service quality across different regions is just frustrating πŸ€•.

On the other hand, I do think we can learn from other sectors, like obstetrics πŸŽ“. The unified service provided by birth units does seem like a pretty great model to emulate πŸ’―. And maybe - just maybe - assisted dying could be part of that conversation? We need to find ways to support patients who are in distressing situations and want some control over their own end-of-life care βš–οΈ.

It's all about finding that middle ground, I think πŸŒ‰. We can't just have one or the other; we need a comprehensive approach that includes improved access, quality, and choice for all patients πŸ’‘.
 
can't believe ppl still say palliative care is separate from assisted dying 🀯 like what's next? just gonna leave my mum to suffer cuz i don't wanna deal with the hassle of actual help πŸ’” anyway, think the gov's Β£100m investment in hospices is a good start but we need more standardized & sustainable funding models πŸ“ˆ gotta prioritize those out-of-hours teams tho, can't have ppl dying cuz they didn't get 24/7 care πŸ‘Ž and btw, birth units in obstetrics are like the ultimate model for palliative care - who's learning from that? πŸ€”
 
OMG, I'm so down with this! 🀩 The fact that a UK parliamentary committee's inquiry into assisted dying is sparking conversations about palliative care is literally everything I've been saying! πŸ™Œ We need to be talking about how we can improve end-of-life care, and assisted dying can't just be ignored. It's like, if we're gonna invest Β£100m in hospices, it better be part of a bigger conversation about how we can make things better for people at the end of life.

And I'm so with Toby Porter on this - more investment is needed, ASAP! πŸ’Έ But let's not forget that there are still major issues with standardization and financial sustainability. Like, how can hospices even operate if they're relying on charitable support? It's all just a bit too patchwork for me.

But I think the idea of learning from other sectors is genius πŸ€“ The obstetrics model is literally the ultimate in unified care - let's bring that to end-of-life care! And as one writer said, even the best palliative care has its limits... and assisted dying can be a dignified option for those who've tried everything else.

So yeah, this debate needs to keep going πŸ’¬ and we need to drive some meaningful conversations about how we can make things better. It's time for us to have a more compassionate system for all patients at the end of life 🌈
 
I'm kinda worried about our NHS right now πŸ€•. All these debates around assisted dying and palliative care are highlighting some major issues with our current system 🚨. Like, what's up with hospices operating on a patchwork system? It's so not fair to patients who need proper care πŸ˜”. And the fact that we're still relying on charitable support is just crazy πŸ’Έ. We need better funding and resources, stat! πŸ’ͺ

I think it's time for us to look at other sectors, like obstetrics, and learn from their unified services πŸ€°β€β™€οΈ. I mean, who wouldn't want 24/7 care when giving birth? 🀯 It's a shame we can't replicate that kind of compassion and quality in our end-of-life care system πŸ’”.

We need to have these hard conversations about palliative care and assisted dying, but also make sure we're investing in the systems that matter most πŸ“ˆ. I'm all for it – let's create a more compassionate and dignified system for everyone who needs it ❀️.
 
I think its pretty wild how the UKs struggling to provide decent palliative care 🀯. The stats on deaths at home and inadequate GP visits are super concerning, especially since its such a big deal for people like my grandma who's dealing with chronic illness. I mean we're already seeing the benefits of this assisted dying bill popping up everywhere, from increased investment in hospices to better out-of-hours services. It just goes to show that when you bring it to the table, people start taking notice πŸ“ˆ. The problem is still gonna be figuring out how to make sure everyone's getting the care they need, but at least we're having a conversation about it πŸ’¬.
 
I'm all for improving palliative care, but I think we need to be careful not to just throw more money at the problem without fixing the underlying issues πŸ€”. The patchwork system in hospices is still a major concern and it's worrying that some areas have limited resources. We also can't ignore the fact that primary care teams are struggling to cope with out-of-hours services, which puts patients in even more distressing situations 😟.

I'm glad that the government is investing more in palliative care, but we need to make sure that these investments are sustainable and that we're learning from other sectors like obstetrics. The birth units model is definitely worth studying and we should be exploring ways to apply those principles to end-of-life care too πŸ’‘.

It's also really important to acknowledge that assisted dying can provide a dignified option for patients who have exhausted all other avenues, but we need to make sure that we're having these conversations in a compassionate and respectful way πŸ™. We can't just focus on the risks associated with assisted dying without considering the human cost of continued suffering.

Let's keep the debate going and work towards creating a more comprehensive approach to palliative care – one that prioritizes dignity, compassion, and choice πŸ’–
 
I think it's crazy that the UK is still struggling with end-of-life care 🀯. It's like they're asking people to die in pain or discomfort when there are so many resources available to improve their care πŸ’Š. The fact that hospices are operating on a patchwork system and relying on charitable support is just not right πŸ™…β€β™‚οΈ. We need better funding and standardization so everyone has access to quality care πŸ“ˆ.

I also think it's interesting that they're looking at other sectors like obstetrics for inspiration 🀰. The idea of having a unified service with better resources is totally doable and would make a huge difference in end-of-life care πŸ’ͺ.

For me, the key is making sure we have access to compassionate and dignified care options without feeling pressured or rushed to die πŸ™. It's not about taking away life, it's about giving people a choice when they're ready to go πŸ’•. And let's be real, if people are going to die anyway, might as well do so with some dignity and respect πŸ‘‘.
 
I'm really skeptical about these "improved palliative care" claims πŸ˜’. It's just a Band-Aid solution to cover up the NHS's bigger problems. They're not going to suddenly fix the lack of standardization and funding issues in hospices, no way. The out-of-hours teams are probably just a way to shift more patients onto under-resourced services. And what about the fact that charitable support is still being relied on? It's like they're just throwing money at the problem without actually addressing the root causes.

And don't even get me started on the idea of emulating obstetrics to improve palliative care πŸ€·β€β™€οΈ. That's not exactly a comparable service, you know. But hey, if it works for giving birth, maybe it'll magically fix end-of-life care too... right? The debate around assisted dying is just another way to spin the NHS's incompetence into something more palatable πŸ‘Ž.
 
I'm still trying to wrap my head around this whole thing πŸ€”. As someone who's lost loved ones to illness, I feel like I've seen firsthand how broken our current end-of-life care system is 😒. The stats on deaths at home and inadequate GP visits during terminal stages are just heartbreaking. We need a more comprehensive approach that prioritizes compassion over bureaucracy πŸ’Έ.

I'm all for embracing innovation from other sectors – those birth units in obstetrics seem like a model worth studying πŸ“š. But we also can't ignore the human cost of continued suffering 😩. I've had friends who've been stuck in hospitals for months, feeling miserable and disconnected from their loved ones... it's just not right.

The fact that hospices are struggling with funding and resources is a clear indication that our system needs to change πŸ”„. We need more standardization, better funding, and a genuine commitment to improving end-of-life care across the board πŸ’•. The debate around assisted dying might be contentious, but at its heart, it's about treating human beings with dignity and respect ❀️.
 
πŸ€” this whole thing is a mess, right? like, you gotta feel sorry for those dying folks who are stuck in a system that's basically broken. Β£100m investment in hospices is cute but what about the real issues? like, standardization and funding? it's all patchy as hell 🚧. and don't even get me started on out-of-hours teams 🀯. shouldn't we be looking at how to make primary care better instead of relying on charity work? 🀝 but at the same time, i get where those who want assisted dying are coming from. it's all about giving people dignity in death, ya know? πŸ’” and honestly, even if palliative care is improved, there'll still be cases where it just ain't enough... so yeah, gotta keep the convo going, but we need to make sure it's not just a PR stunt πŸ“°.
 
I don’t usually comment but I think it’s really interesting that people are finally talking about the state of palliative care in the UK πŸ€”. It feels like the government is taking some steps in the right direction with that Β£100m investment, but we need to see more consistency and standardization across different regions. And out-of-hours teams aren’t helping, it’s just pushing more patients into a patchwork system πŸš‘. But I do think assisted dying could be part of the solution - I mean, if someone is in unbearable pain or distress, shouldn’t they have a choice? πŸ’‘
 
I think ppl r so caught up in debating assisted dying that dey forgot about the bigger picture - ppl dyin in pain r gettin neglected πŸ€•. We need 2 focus on improvin palliative care first, not just throwin more money at hospices without any real plan πŸ’Έ. De NHS needs a overhaul, period. We cant just keep makin excuses 4 why dey dont have enuf resources. Its time 4 some serious changes, not just a patchwork system 🀯.
 
I gotta say, the state of end-of-life care in the NHS is just heartbreaking πŸ€•. I've had my grandma pass away recently, and I saw firsthand how under-resourced the palliative care services are. It's like they're saying, "Sorry, mate, you've got two years to live, here's some painkillers and a bed" πŸ˜”.

I think we need to have a more open conversation about this, not just around assisted dying, but around how we can improve the whole system. I mean, those birth units in obstetrics are doing it right – unified service, better funding... why can't we do that for our patients? πŸ€·β€β™€οΈ

And yeah, I get it, there's a risk to assisted dying, but it's not like they're just gonna wake up one day and be like, "Hey, I'm outta here!" πŸ˜‚ It's about dignity, you know? My grandma was stuck in a bed for months, in pain, unable to move... that's not living. We need to do better πŸ’•.

I think the government is on the right track with all this investment, but we need to make sure it's not just a patchwork system. I mean, what's the point of having 100m quid if it's just gonna get splashed around like that? πŸ€‘ We need standardization, financial sustainability... and a bit more compassion, tbh ❀️.
 
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